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Oman
Pakistani parents race against time to save 5-year-old daughter in Oman
September 20, 2015 | 09:23 PM
By Rahul Das
Basma Mohammad Faisal, a five-year-old girl, is suffering from multiple disorders. Photo-Jun Estrada
Pakistani parents race against time to save daughter in Oman
#Pakistani parents race against time to save daughter in #Oman
Muscat:*It is a race against time for the parents to save their little girl after losing the first one to a similar disease. Basma Mohammad Faisal, a five-year-old girl, is suffering from multiple disorders.
Basma is unable to consume food or even digest it. Even if she eats a little, she immediately throws it up as the tube connecting her liver to her pancreas is partially blocked.
She is slated to undergo a liver transplant as she is suffering from liver cirrhosis. “The child immediately needs two surgeries, one for liver and the other for pancreas,” her father, Mohammad Faisal Raza, said.
Raza, a Pakistani national, plans to take Basma to India for the liver transplant as soon as possible as medical facilities to conduct the surgery are not available in Oman or back home in Pakistan. “I had lost my elder daughter to the same disease about 11 years back. I don’t want to lose her (Basma) too,” he said, as tears rolled down his cheeks.
His elder daughter, Asfa Mohammed Faisal, died on December 6, 2004, after succumbing to liver cirrhosis.
“At that time also, doctors had suggested a liver transplant, but we were unable to afford her treatment and she died,” said Raza, who has been working in Oman since November 1991.
Basma has another elder sister, Aneeqa and an elder brother named Mohammed Fawad, who are both students at the Pakistan School, Nizwa. “But she (Basma) is yet to start her studies because of her illness,” Raza said.
Doctors have also confirmed the need to be operated immediately. “We think that she should undergo surgery soon, due to her problematic liver and pancreas,” said Dr. Sanju Joy, a doctor at Badr Al Samaa, Nizwa, who has been treating Basma regularly.
At the Royal Hospital, doctors reiterated that Basma is suffering from the Wilson disease—a rare inherited disorder that causes too much copper to accumulate in one’s liver, brain and other vital organs.
“The child is suffering from a cirrhotic liver and needs a liver transplant abroad, along with a reconstruction of her biliary structure,” a medical report from the Royal Hospital, issued on August 30, stated.
A biliary structure is an abnormal narrowing of the common bile duct, the tube that moves bile from the liver to the small intestine. Bile is a substance that helps with digestion.
Basma’s father has gotten in touch with the Apollo Hospital and Global Hospital in India to find out more about the cost of treatment. “We will be applying for an Indian medical visa soon,” he said.
After going through the clinical details, the Apollo Hospital in India confirmed that the child is suffering from liver cirrhosis; with chronic pancreatitis that may be due to an inherited metabolic disorder as the child is a product of consanguineous marriage.
“The child, in all likelihood, will require a liver transplant where the donor has to be from the immediate family, either one of the parents if they have the same blood group as the child or a donor from the O blood group, aged between 18 and 50 years.”
To conduct this operation, the hospitals are quoting any amount in between $45,000 and $50,000. “Where will I get around OMR20,000, which is required for the operation?” Raza, who works as a sales manager in a private limited company, asked.
“Besides this, there will be other expenses, such as flight tickets and hotel bookings as we are expected to land there within a week to 10 days before the operation and also need to stay in India for 15 to 30 days after being discharged,” he said, adding that he had decided to become a donor to his child.
“I could not do anything for my elder daughter, but this time I will go all out to save her (Basma),” he added.
Guys please help as much as you can! Jazak Allah khair...
Original link:
Oman
Pakistani parents race against time to save 5-year-old daughter in Oman
September 20, 2015 | 09:23 PM
By Rahul Das
Basma Mohammad Faisal, a five-year-old girl, is suffering from multiple disorders. Photo-Jun Estrada
Pakistani parents race against time to save daughter in Oman
#Pakistani parents race against time to save daughter in #Oman
Muscat:*It is a race against time for the parents to save their little girl after losing the first one to a similar disease. Basma Mohammad Faisal, a five-year-old girl, is suffering from multiple disorders.
Basma is unable to consume food or even digest it. Even if she eats a little, she immediately throws it up as the tube connecting her liver to her pancreas is partially blocked.
She is slated to undergo a liver transplant as she is suffering from liver cirrhosis. “The child immediately needs two surgeries, one for liver and the other for pancreas,” her father, Mohammad Faisal Raza, said.
Raza, a Pakistani national, plans to take Basma to India for the liver transplant as soon as possible as medical facilities to conduct the surgery are not available in Oman or back home in Pakistan. “I had lost my elder daughter to the same disease about 11 years back. I don’t want to lose her (Basma) too,” he said, as tears rolled down his cheeks.
His elder daughter, Asfa Mohammed Faisal, died on December 6, 2004, after succumbing to liver cirrhosis.
“At that time also, doctors had suggested a liver transplant, but we were unable to afford her treatment and she died,” said Raza, who has been working in Oman since November 1991.
Basma has another elder sister, Aneeqa and an elder brother named Mohammed Fawad, who are both students at the Pakistan School, Nizwa. “But she (Basma) is yet to start her studies because of her illness,” Raza said.
Doctors have also confirmed the need to be operated immediately. “We think that she should undergo surgery soon, due to her problematic liver and pancreas,” said Dr. Sanju Joy, a doctor at Badr Al Samaa, Nizwa, who has been treating Basma regularly.
At the Royal Hospital, doctors reiterated that Basma is suffering from the Wilson disease—a rare inherited disorder that causes too much copper to accumulate in one’s liver, brain and other vital organs.
“The child is suffering from a cirrhotic liver and needs a liver transplant abroad, along with a reconstruction of her biliary structure,” a medical report from the Royal Hospital, issued on August 30, stated.
A biliary structure is an abnormal narrowing of the common bile duct, the tube that moves bile from the liver to the small intestine. Bile is a substance that helps with digestion.
Basma’s father has gotten in touch with the Apollo Hospital and Global Hospital in India to find out more about the cost of treatment. “We will be applying for an Indian medical visa soon,” he said.
After going through the clinical details, the Apollo Hospital in India confirmed that the child is suffering from liver cirrhosis; with chronic pancreatitis that may be due to an inherited metabolic disorder as the child is a product of consanguineous marriage.
“The child, in all likelihood, will require a liver transplant where the donor has to be from the immediate family, either one of the parents if they have the same blood group as the child or a donor from the O blood group, aged between 18 and 50 years.”
To conduct this operation, the hospitals are quoting any amount in between $45,000 and $50,000. “Where will I get around OMR20,000, which is required for the operation?” Raza, who works as a sales manager in a private limited company, asked.
“Besides this, there will be other expenses, such as flight tickets and hotel bookings as we are expected to land there within a week to 10 days before the operation and also need to stay in India for 15 to 30 days after being discharged,” he said, adding that he had decided to become a donor to his child.
“I could not do anything for my elder daughter, but this time I will go all out to save her (Basma),” he added.
Guys please help as much as you can! Jazak Allah khair...
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